Transplant Services | Patient Resources & Education

Transplant Patient Resources

General Resources for Transplant and Organ Donation

www.aotaonline.org
American Organ Transplant Association is a non-profit organization helping make organ transplant surgery & aftercare available to anyone who needs it.

www.trioweb.org
Transplant Recipients International Organization – News about legislation affecting transplantation, TRIO chapters news, e.g. how to be involved in the organ donation float in the Rose Parade, transplant recipients of friend of transplant in the news.

www.unos.org
The United Network for Organ Sharing offers links to news stories related to transplant and health care, donor information, outcomes data, number of people actively awaiting donated organs as examples.

www.dontatelife.net
Donate Life America is a 501(c)3 nonprofit organization leading its national partners and Donate Life State Teams to increase the number of donated organs, eyes and tissues available to save and heal lives through transplantation while developing a culture where donation is embraced as a fundamental human responsibility. 

www.neds.org
Links to New England Donor Services for more information on organ donation, educational programs and becoming an organ donor.

Resources for Kidney Disease and Transplant

www.aakp.org
“The American Association of Kidney Patients (AAKP) is a national non-profit organization founded by kidney patients for kidney patients. We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.” (AAKP welcoming statement to the website, (AAKP, 2009).)

www.kidney.org
National Kidney Foundation (NKF) – provides multiple educational resources for patients and health care professionals. Patient education materials available in English and Spanish.

www.pkdcure.org
Polycystic Kidney Disease Foundation, information about living with polycystic kidney disease (PKD), patient resources, research studies to treat and cure PKD.

www.rsnhope.org
Renal Support Network, serving those affected by kidney disease by others who have kidney disease. RSN continues to serve the kidney community by instilling health, happiness, and hope through education, advocacy, and awareness... one person at a time."

Resources for Liver Disease and Transplant

www.liverfoundation.org
American Liver Foundation is a national, voluntary non-profit health agency dedicated to preventing, treating, and curing hepatitis and all liver ailments.

Educational Resources for Advanced Heart Failure & Transplant

hfsa.org/patient
Learn about the basics of heart failure including risk factors, symptoms, treatment, living with heart failure, and more with this series of educational facts and important terms.

www.mylvad.com
At MyLVAD our mission is to help improve the quality of life and outcomes for people living in the LVAD world. We hope to provide information, support, direction, and inspiration for those who live with LVADs.

Transplant Psychosocial Resources

Transplant Support Guide

Smoking Cessation Flyer

Send a Care Card
The decision to write to a donor or recipient family is a personal choice. This site offers  donor family and recipient guidelines for you to learn more about this process.